I have concluded that I am turning into one of those morbid,
old ladies who always talks about her impending doom. This transformation has occurred slowly and
anyone who knew me before the cancer knows that I have always been a little bit
old ladyish, but things have only taken a turn for the worst. It started slowly, but in the last few months
has hit me full on. Let me just explain
a little how this all began.
Initially, I had a lot of back pain. I did some physical therapy and that seemed
to be helping, but not really. You see
the pain is actually caused by the swelling of cancer-filled lymph nodes in my
stomach and lower abdomen. When these
swell up, the put pressure on my lower back and cause the pain. Now, I often walk around with one hand on my
back, slightly stooped, and I often shuffle.
I hate standing for long periods of time and get grumpy if I have to do
any activity that involves copious amounts of walking or standing. I frequently need to take sitting
breaks. So yes, I have the stature of an
old lady and I have that whole cranky old person thing down pat.
The back pain is so bad that I have been placed on this wondrous
drug known as the fentanyl patch. It’s a
little square sticker that adheres to my body and provides a continuous stream
of narcotics. Anyone who has a tolerance
for opiates would rejoice in this new-fangled contraption whereas I curse the
bloody thing’s existence. It makes me so
very sick. Nausea is a continued
problem. That fancy, overpriced bracelet
that I talked about in the last blog does not work. I repeat, do not spend your money on it. It did help a little bit, but it wasn’t
really worth it. Only after we (and by
we I mean my lovely parents who are supporting and caring for me) purchased
this contraption did we learn that it only lasts for 150 hours and has a
battery that is not replaceable. On top
of that, it broke! The part of the strap
that connected to the watch-like center just popped off one day. So good riddance to that worthless piece of
technology. Since then they have put me
on stronger anti-nausea medicine, which does help quite a lot (it still doesn’t
completely get rid of it), but also gives me really bad headaches.
As a result of all of this pain and sickness I have lost an
awful lot of weight. I spend a good
three days per week being unable to stand, read, or focus on anything without
throwing up and then at least two or
three days recovering only to be hit again with another round of chemo. I’ve turned into a vomiting slug. Food is very hard to eat and to keep
down. First of all, eating causes
pain. Every time I eat something it ends
up in my stomach and lower abdomen, which already don’t have that much room for
extra stuff. This equals more back
pain. On top of this, my stomach is
never fully healed from all the acid that comes from vomiting on a regular
basis so it just simply hurts to eat. In
the end, I’ve started to drink those Ensure shakes in order to sneak extra
calories in. You may have seen your
grandparents drinking these or you may have seen the commercials with the old
people talking about how great they are and nutritious… Yep, I have become the
elderly. Although, the chocolate shakes
aren’t that bad. They taste just like
chocolate milk and if you throw them up it’s like throwing up chocolate. It’s a win win situation. I wonder if they’d
put this on their commercial?
Aside from throwing up a lot, I’ve started all these little
hobbies. I have an herb garden that I
occasionally putter outside to water and I’ve started to quilt. Yes, that’s right, quilt. I do, however, refuse to learn how to knit, crochet,
or embroider. Nope, I am not doing
it. Though, several people have
suggested it. I may have turned into a
grandmother, but I’m a cool grandmother.
Just remember that, I am cool, okay?
I have also started to plan my funeral. I consistently make jokes about my death and
try to pass on beads of wisdom to my friends.
I also find myself saying, “Well, we better do that soon before it’s too
late…” in ominous tones. I’m sure they
appreciate this. They better because,
hey, I might not be around much longer (see what I did there?). I definitely want to be cremated and, if
possible, have a tree planted over my buried ashes. Except that this is really hard to do. Most cemeteries don’t allow you to plant
things because (and this is the most stupid thing I’ve ever heard) it makes it
hard to mow. Seriously, guys? I mean my family pays for that land and then,
in some cases, they continue to pay fees so that you take care of said
land. Honestly, they should suck it
up. So their job is a little hard, at
least they’re alive to do it. Anyway,
rants aside, I really do want to have a nice funeral. I know I’ll be dead and won’t get to enjoy it
like everyone else, but there absolutely must be good food and alcohol. I also really hope that everyone doesn’t wear
straight black to my funeral. I want to
be remembered, not mourned.
Anyway, life is just super frustrating right now. I get winded just walking a mile on the days
when I can walk. Most of the time, I
just hang out on the couch trying to figure out how to move or be comfortable
without causing pain or vomiting. I seem
to lack a sense of purpose and, to be honest, death doesn’t look that bad. Things do get better on my week away from
chemo. It just sucks that I feel so
worthless most of the time. Who would
hire a girl who’s sick two-to-three days per week? No one would. I could find a way to be self-employed, but
it is hard to be motivated when your head is pounding or you think you might
throw up at any second. It just really
sucks right now. Maybe I will get used
to this chemo and it will get better? I
don’t know. We won’t really know until
it happens. Also, I won’t know if this
chemo is even working until next week so it just feels like I’m doing this for
nothing at the moment. On the bright
side, I have begun watching a great deal of HGTV and now feel confident that I
could help you buy a house or redesign a room.
So yeah, I will sit here with my old lady self and wait. Maybe next week we will get some good news
and maybe we won’t. The thing about
having cancer is that you never really know anything. Oh, and that it turns you into an old
woman.